Support Groups
Children and Adults with Attention Deficit Disorders - C.H.A.D.D.
8181 Professional Place
Suite 301
Landover, MD 20785
Toll Free: 800-233-4050
http://www.chadd.org/
Attention Deficit Hyperactivity Disorder is often diagnosed in children and adults with FAS/FAE. Local CHADD support groups are available in most states.
NOFAS FASD Family Support Group
Holy Cross Hospital
1500 Forest Glen Road
Silver Spring, MD
Contact: Brianna Montgomery
montgomery@nofas.org
The National Organization on Fetal Alcohol Syndrome sponsors a free family support group meeting for anyone whose life has been affected by FASD. Call 202-785-8570.
Diagnosis of FAS
Johns Hopkins University - Medical School, Department of Genetics
600 N Wolfe Street
Baltimore, MD 21287
Phone: 410-955-3071 Fax: 410-614-9246
Greater Washington Maternal-Fetal Medicine and Genetics
9707 Medical Center Drive
Suite 230
Rockville, MD 20850
Phone: 301-279-6060 Fax: 301-279-6345
Contact: Thomas Pinckert
tpickner@ahm.com
http://www.gwmfm.com/
Johns Hopkins University - Medical School, Department of Pediatric Neurology
600 N Wolfe Street - Jefferson 123
Baltimore, MD 21287-8811
Phone: 410-614-5803 Fax: 410-614-2297
Contact: Harvey Singer, Thomas Crawford, Ann Comi
hsinger@jhmi.edu
Thomas Crawford's E-mail: tcrawfo@jhmi.edu
Kennedy-Krieger Institute - Department of Outpatient Psychiatry, Behavioral Teratology Clinic, FASD Clinic
Phone: 443-923-7620 Fax: 443-923-7628
443-923-9200 Fax: 410-502-9884
Treat psychiatric issues in patients with FAS. The KKI Family Center works with Baltimore's Adoption Program to provide respite and other services for special needs children in adoptive placement.
University of Maryland School of Medicine - Department of Pediatrics
655 W. Lombard
Suite 311
Baltimore, MD 21201
Phone: 410-706-5289 Fax: 410-706-0653
Contact: Virginia Keane, James King
University of Maryland School of Medicine - Division of Human Genetics
100 W. Green St. room 414
410-328-3335, MD 21201
Phone: 410-328-3335 Fax: 410-328-5484
Contact: Eric Wulfsberg
More Info. on FASDs
Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence
1700 Research Blvd., #400
Rockville, MD 20850
Phone: 301-294-5401 Fax: 301-294-5401 Toll Free: 866-786-7327
Contact: Callie Gass, Project Director
fascenter@samhsa.gov
http://fasdcenter.samhsa.gov/
National Organization on Fetal Alcohol Syndrome
900 17th Street, NW, Suite 910
Washington, DC 20006
(800) 66–NOFAS; Fax: (202) 466–6456
Web Site: http://www.nofas.org/
Advocacy
Maryland Disability Law Center
Walbert Building Suite 400
1800 N Charles
Baltimore, MD 21201
Phone: 410-234-2791 Fax: 410-727-6389
Protection and advocacy agency for persons with developmental disabilities.
Prevention Programs, including Treatment for Women
Alcoholics Anonymous (AA)
check your local phone book for listings in your area
Website: http://www.aa.org/
Johns Hopkins Bayview Medical Center - Center for Addiction and Pregnancy
4940 Eastern Avenue, D4 East
Baltimore, MD 21224
Phone: 410-550-3051 Fax: 410-550-3027
A one-stop treatment program for substance abusing women and their families, providing care for the affected pregnant woman, her baby, and for her other children as indicated. Another telephone number: 410-550-3066.
Substance Abuse and Mental Health Services Administration (SAMHSA)
Treatment Facility Locator
(800) 662–HELP
Internet address: http://www.findtreatment.samhsa.gov/
National Council on Alcoholism and Drug Dependence (NCADD)
244 East 58th Street 4th Floor
New York, NY 10022
Phone: (212) 269–7797; Fax: (212) 269–7510
HOPE LINE: (800) NCA–CALL (24-hour Affiliate referral)
Email: national@ncadd.org
Web Site: http://www.ncadd.org/
National Institute on Alcohol Abuse and Alcoholism
5635 Fishers Lane
Bethesda, MD 20892–9304
(301) 443–3860; Fax: (301) 480–1726
Web Site: http://www.niaaa.nih.gov
Maryland Department of Health and Mental Hygiene - Alcohol and Drug Abuse Administration
55 Wade Ave.
Catonsville, MD 21128
Phone: 410-402-8600 Fax: 410-402-8601
102264.360@compuserve.com
Can refer pregnant patients to treatment programs.
National Clearinghouse for Alcohol and Drug Information
P O Box 2345
Rockville, MD 20847-2345
Toll Free: 800-729-6686
Wbb Site: http://www.health.org/default.aspx
SAMHSA's National Clearinghouse for Alcohol and Drug Information (NCADI) is the Nation's one-stop resource for information about substance abuse prevention and addiction treatment. NCADI distributes publications on prevention, intervention, and treatment of alcohol, tobacco, and other drug abuse including materials are available on FAS/FAE/ARND. NCADI also provides referrals to addiction treatment centers. They are available 24 hours a day, 7 days a week.
Statewide Services
Maryland FASD Coalition
Department Health and Mental Hygiene, Center for Maternal and Child Health
201 West Preston Street Room 317
Baltimore, MD 21202
Phone: 410-767-5581 Fax: 410-333-5233
Contact: Mary Johnson, Maryland State FASD Coordinator
mdjohnson@dhmh.state.md.us
Website: http://fha.maryland.gov/mch/fasd_home.cfm
Developmental Disabilities Administration
Department of Health and Mental Hygiene coordinated service delivery system for individuals with developmental disabilities in the State of Maryland. Regional Offices across the state.
Website: http://dhmh.maryland.gov/dda_md/
FAS Trainer/Consultants
Kathleen Mitchell, MHS, CCDC
3501 Tavenner Ct.
Olney, MD 20832
Phone: 202-785-4585 Fax: 202-466-6456
Teresa Kellerman
Fasstar Enterprises
7725 E. 33rd Street
Tucson, AZ 85710
520 - 296 - 9172
www.fasstar.com
Books on FASDs & Related Issues
Damaged Angels by Bonnie Buxton
ADHD and Fetal Alcohol Spectrum Disorders by Kieran D. O'Malley
Fantastic Antone Succeeds by Judith Kleinfeld
Fantastic Antone Grows Up: Adolescents and Adults with Fetal Alcohol Syndrome by Judith Kleinfeld
Fetal Alcohol Syndrome and Fetal Alcohol Effects: Strategies for Professionals by Diane Malbin
Pregnancy and Alcohol: A Mother's Responsible Disturbance by Elizabeth Russell
Fetal Alcohol Syndrome: A Guide for Families and Communities by Ann Streissguth
Hard to Place: A Crime of Alcohol by Katherine Norgard, Ph.D
The Broken Cord by Michael Dorris
The Challenge of Fetal Alcohol Syndrome: Overcoming Secondary Disabilities by Ann Streissguth
Our Fascinating Journey by Jodee Kulp & Liz Kulp
Trying Differently Rather Than Harder by Diane Malbin
The Martian Child by David Gerrold
Living In My Skin: An Insider's View of Life with a Special Needs Child by Lori A. Hickman
The Out-of-Sync Child: recognizing and Coping with Sensory Integration Dysfunction by Carol Stock Kranowitz and Larry B. Silver
The Difficult Child by Stanley Turecki, Leslie Tonner
Beautiful Smiles, Gentle Spirits FASDs: A Misunderstood Problem by Margaret Michaud
Infants and Children with Prenatal Alcohol and Drug Exposure: A Guide to Identification and Intervention by Keeta DeStefano Lewis
9 Lives I Will Survive by Jan Crossen
Speaking and Learning the FASD Way by Carol McAndrew
The Best I Can Be: Living with Fetal Alcohol Syndrome by Jodee Kulp & Liz Kulp
The Long Way to Simple by Stephen Neafcy
Finding Perspective... Raising Successful Children Affected by Fetal Alcohol Spectrum Disorders by Liz Lawryk
Worth the Trip: Raising and Teaching Children with Fetal Alcohol Syndrome DVD- Real Families
Students Like Me: Teaching Children with Fetal Alcohol Syndrome DVD- Real Families
Forgetful Frankie, The World's Greatest Rock Skipper, Fetal Alcohol Spectrum Disorder by Jill Bobula
My Invisible World by Morasha Winokur
Forfeiting All Sanity by Jennifer Poss Taylor
FAS: Parent and Child byBarbara Morse & Lynn Weiner
Recognizing and Managing Children With Fetal Alcohol Syndrome/Fetal Alcohol Effects: A Guidebook by Brenda McCreight
"Cheers! Here's to the Baby!" A Birth Mother's Discovery of Fetal Alcohol Syndrome by Linda Lefever
Help for the Hopeless Child by Ron Federici
